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Archive for the ‘HAWMC’ Category

Comment! Pick someone else’s blog post and write a comment to them. Write that comment as your post for today and link back to them to let them know you were inspired.

There’s a blogger with a post that I REALLY want to comment on. I found it completely by accident one day when I was surfing Facebook or Twitter (or both) and happened to click on a link that interested me for whatever reason and was astounded by what I read. This person has MG (myasthenia gravis) first and type 1 diabetes second. I specifically mention them in that order because this is how the writer presents them to her reader. She’s had MG longest and explains that type 1 diabetes came along but is mostly viewed as a secondary annoyance rather than a primary concern.

What?

Wait.

Huh?

It blew my mind. The idea that someone could consider the disease I’ve struggled with for almost 32 years to be a secondary concern made me stare at the computer screen as though the text had suddenly become written in a language I didn’t speak. But then I stopped and thought about it. And came to the realization that I do the very same thing. I too have two chronic diseases – type 1 diabetes and Rheumatoid Arthritis (RA). I also specifically talk about them in that very order.

Type 1 diabetes was my original diagnosis from when I was seven years old. I was diagnosed with rheumatoid arthritis when I was in my 30s. Maybe it’s the age at diagnosis, maybe it’s the perceived cellular damage from the disease, but diabetes has always been my primary concern. RA has remained more of a, well, nuisance. When I was first diagnosed I was heartbroken. When I researched the chemotherapy medication my doctor wanted to put me on (whose list of side effects includes DEATH) I was fearful. However, when I finally got over my self-pity party I actually thought, wait, I just need to take a pill for this? BRING IT ON. After diabetes it just seemed so simple.

So I read this person’s blog and had an epiphany. There are people with RA reading my blog and thinking the same thing. These are people who’ve suffered much worse with this disease and can’t imagine placing another disease in a higher priority. It made me think about that fable. You know, the one where a group of people go in a room and put all their troubles on a table and have the option to take someone else’s? That’s right, the one where they end up taking back their own troubles and going home.

I would so totally do that with type 1 diabetes – it’s the evil I know.

 

I would comment on the blog that inspired this post – only I can’t find it! I’ve looked everywhere. I know it’s out there though, so if it’s your blog, please let me know and I’ll comment. In your post, you had mentioned that MG means you have to rest and diabetes means you have to exercise (if that helps)…

 

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Write a health acrostic for your condition, hashtag, or username! (acrostic = a poem where every letter of a word serves as the first letter of a word or phrase i.e. DOG = Digs Others’ Gardens)

RA = Really Aggravating

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If you could go back in time and talk to yourself (or your loved one) on the day of diagnosis, what would you say?

You can do this.

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Write about your favorite social network. Do you love Twitter? Facebook? Pinterest? Why?

My favorite social network when it comes to my health issues is Twitter. I love it. A lot.

While it’s a lot like shouting your thoughts out in a megaphone in the middle of Times Square, it’s somehow more intimate than Facebook at the same time. Maybe because the people on Twitter have a genuine interest in what you have to say and what you’re going through. I mean think about it – on Twitter they could follow ANYONE. There’s no limit, no friendship required, they CHOOSE you. When you send a friend request on Facebook out to anyone really, there’s SOME kind of social obligation to accept it for the most part. You’re friends, family, coworkers, fellow high school alumni, or you know you’re going to keep seeing this person at parties for the REST OF YOUR LIFE and don’t want to be confronted as to why you never accepted their friend request. (People really do that – it’s awkward.)

But on Twitter you just put some information out there – my profile mentions my type 1 diabetes and rheumatoid arthritis – and suddenly a world of people interested in what you have to say or in similar situations opens up to you. The Diabetes Online Community (DOC) in particular, is amazing. I’ve made friends, found doctors and information on updated medical equipment and pharmaceuticals, and found people experiencing the same thing AS ME. It’s inspiring, comforting, empowering.

So, in short, I love Twitter. And to my 600+ followers – thank you.

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Day 10 - HAWMC - Les Apparences Peuvent être Trompeuses

It’s often hard to like pictures of ourselves – post your favorite picture of yourself. (Extra points if you can guess where we are 🙂

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Write a letter to an older you (tell us what age you’re writing to!). What do you want to ask yourself? What lesson do you want to make sure you remember?

Oh geez, okay, let’s pick 60. A little over 20 years from now.

Dear 60 year-old Me,

YOU NEVER THOUGHT YOU’D LIVE THIS LONG DID YA?!?!?!?!? No, you didn’t. Let’s be honest, you never thought you’d see 40 either, but here I am just six months away from the big 4-0 writing you this letter. Congratulations, you’ve made it this far.

I don’t know what complications you’re currently experiencing, but I’m guessing there’s some. Maybe the retinopathy that was an issue briefly in your 20s has raised it’s ugly head again and you’ve undergone a few more laser eye treatments. Hopefully they’re successful. Maybe the dreaded gastroparesis or kidney disease has started. OR, probably your biggest fear – a heart attack. Because let’s face it, those lows really do a number on your heart.

Or maybe you’re lucky. Because, let’s face it, a lot of living with type 1 diabetes is all about luck and we’ve had a lot so far – hopefully it will last. But I don’t think it will.

Maybe by now you’ve had your first ambulance ride and hospital stay due to hypoglycemia. It’s bound to happen, right? What person with type 1 diabetes makes it this or that long without one?

But regardless of whether your body is continuing with its lucky streak or you’re unable to walk any longer due to neuropathy, you can’t go back and undo bad decisions you made.

Stop thinking about that one time when you were 39 and exhausted from a super busy day and fell into a dreamless sleep for SEVEN UNINTERRUPTED HOURS only to wake up, look at your CGMS and realize that you were over 300 most of the night and didn’t even hear it buzzing at you to fix the problem. It was a stupid error and you were pissed at yourself then, but you can’t change the fact that it happened. Stop dwelling on it.

There may have been a lot of questionable decisions you made in your “youth”. Waiting too long to go on the insulin pump, not giving yourself enough insulin to cover the meal you ended up eating, choosing to go out to dinner with a client even though you knew you didn’t have your insulin with you. Those are just a few. Regardless of the repercussions, understand this:

YOU LIVED YOUR LIFE.

You didn’t let diabetes choose how you lived it. You enjoyed many activities and situations that you might have missed out on if you were overly cautious or completely unyielding in your care.

And you know what? You may be paying for it or you may not be paying for it now. But either way, the choice was made and can’t be undone. Just please promise me that you’ll continue to move forward making the best possible choices you can and not let yourself get mired in self-pity and recrimination because of the choices you made in the past.

Overall, your A1Cs were good. Better than good for a lot of the time. And you were extremely well-educated medically as to what was going on with your body and why. You could have done better, sure. You could have done a helluva lot worse too.

What’s done is done. Now go enjoy that artificial pancreas that you should be wearing by now.

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Well, I blogged every day of April but two. Hey, they SAID I could skip two!!! So I did. It was fun, not as stressful as I thought it would be, and maybe JUST MAYBE I’ll blog a little more often now. We’ll see.

My Favorite Post(s):

My personal favorite was the superpower one. This is something I’d been wanting to write about in some form or another – the idea that just because you have one chronic disease, doesn’t mean that you’re immune (pun intended) to other illness.

The post that others seemed to like the most was the letter to my 16-year old self.

And the one that just made me giggle to myself once I got going was the Cure post. To all of you who have landed on my blog looking for a cure for type 1 diabetes (and according to my stats there are A LOT) – I’m so sorry for raising your hopes falsely. Please, please don’t take my cure seriously. PLEASE. Also, there is no cure for diabetes. I’ve been dealing with this for almost 31 years already so I’m not even going to say, “YET”. But it’s chronic. If you want a cure, donate to JDRF.

My Least Favorite Posts:

I’m not even going to link to them, but they were the goofy ones: Haiku, madlib, those kinds of things.

To whomever is reading this; I hope I haven’t bored or annoyed you this past month. It was mostly an exercise to see if I could do it. And like so many other things in my life – I did!

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