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Archive for the ‘Rheumatoid Arthritis’ Category

Comment! Pick someone else’s blog post and write a comment to them. Write that comment as your post for today and link back to them to let them know you were inspired.

There’s a blogger with a post that I REALLY want to comment on. I found it completely by accident one day when I was surfing Facebook or Twitter (or both) and happened to click on a link that interested me for whatever reason and was astounded by what I read. This person has MG (myasthenia gravis) first and type 1 diabetes second. I specifically mention them in that order because this is how the writer presents them to her reader. She’s had MG longest and explains that type 1 diabetes came along but is mostly viewed as a secondary annoyance rather than a primary concern.

What?

Wait.

Huh?

It blew my mind. The idea that someone could consider the disease I’ve struggled with for almost 32 years to be a secondary concern made me stare at the computer screen as though the text had suddenly become written in a language I didn’t speak. But then I stopped and thought about it. And came to the realization that I do the very same thing. I too have two chronic diseases – type 1 diabetes and Rheumatoid Arthritis (RA). I also specifically talk about them in that very order.

Type 1 diabetes was my original diagnosis from when I was seven years old. I was diagnosed with rheumatoid arthritis when I was in my 30s. Maybe it’s the age at diagnosis, maybe it’s the perceived cellular damage from the disease, but diabetes has always been my primary concern. RA has remained more of a, well, nuisance. When I was first diagnosed I was heartbroken. When I researched the chemotherapy medication my doctor wanted to put me on (whose list of side effects includes DEATH) I was fearful. However, when I finally got over my self-pity party I actually thought, wait, I just need to take a pill for this? BRING IT ON. After diabetes it just seemed so simple.

So I read this person’s blog and had an epiphany. There are people with RA reading my blog and thinking the same thing. These are people who’ve suffered much worse with this disease and can’t imagine placing another disease in a higher priority. It made me think about that fable. You know, the one where a group of people go in a room and put all their troubles on a table and have the option to take someone else’s? That’s right, the one where they end up taking back their own troubles and going home.

I would so totally do that with type 1 diabetes – it’s the evil I know.

 

I would comment on the blog that inspired this post – only I can’t find it! I’ve looked everywhere. I know it’s out there though, so if it’s your blog, please let me know and I’ll comment. In your post, you had mentioned that MG means you have to rest and diabetes means you have to exercise (if that helps)…

 

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Write a health acrostic for your condition, hashtag, or username! (acrostic = a poem where every letter of a word serves as the first letter of a word or phrase i.e. DOG = Digs Others’ Gardens)

RA = Really Aggravating

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If you could go back in time and talk to yourself (or your loved one) on the day of diagnosis, what would you say?

You can do this.

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Write about your favorite social network. Do you love Twitter? Facebook? Pinterest? Why?

My favorite social network when it comes to my health issues is Twitter. I love it. A lot.

While it’s a lot like shouting your thoughts out in a megaphone in the middle of Times Square, it’s somehow more intimate than Facebook at the same time. Maybe because the people on Twitter have a genuine interest in what you have to say and what you’re going through. I mean think about it – on Twitter they could follow ANYONE. There’s no limit, no friendship required, they CHOOSE you. When you send a friend request on Facebook out to anyone really, there’s SOME kind of social obligation to accept it for the most part. You’re friends, family, coworkers, fellow high school alumni, or you know you’re going to keep seeing this person at parties for the REST OF YOUR LIFE and don’t want to be confronted as to why you never accepted their friend request. (People really do that – it’s awkward.)

But on Twitter you just put some information out there – my profile mentions my type 1 diabetes and rheumatoid arthritis – and suddenly a world of people interested in what you have to say or in similar situations opens up to you. The Diabetes Online Community (DOC) in particular, is amazing. I’ve made friends, found doctors and information on updated medical equipment and pharmaceuticals, and found people experiencing the same thing AS ME. It’s inspiring, comforting, empowering.

So, in short, I love Twitter. And to my 600+ followers – thank you.

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Word Cloud. Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make the branches of your “tree” extend further. http://www.wordle.net/

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5 Challenges. 5 Small Victories. Make a list of the 5 most difficult parts of your health focus. Make another top 5 list for the little, good things (small victories) that keep you going.

Most Difficult:

  1. Constant worry. The other day my left big toe was hurting me. Did I think about the fact that I had run 3 miles and walked 2 and then spent several hours in heels? No. I worried about whether I was developing neuropathy. For the record, my big toe is now fine.
  2. Getting prescriptions filled. ONE OF THE MOST ANNOYING ACTIVITIES. The doctor’s office didn’t respond to the pharmacies request. So this now involves phone calls to the pharmacy, phone calls to the doctor’s office, phone calls to the pharmacy again – what, you STILL haven’t received the prescription?!? Yup, another call to the doctor’s office. This happens so often with ALL my doctor’s (at some point or another).
  3. Getting my pump replaced.My pump breaks. A lot. My friends with type 1 diabetes ask what the heck I’m doing with the pump but honestly I think I just have bad pump karma. So every time I need a new one, it’s about an hour on the phone (at least). Then, when the new pump arrives, it’s programming it. But at least now my daughter’s old enough to help.

    Programming pumps
    Yay, she thinks it’s FUN!!

  4. Going to bed. If you’ve ever had an overnight low (and chances are that if you have type 1, you have) then you understand what I mean. When you’re feeling especially fragile, going to bed can be a bit nerve-wracking.
  5. Daily interruptions. Stop and do a blood sugar. Stop and take your medication. Stop and make necessary doctor/pharmacy/pump manufacturer phone calls. Stop and treat a low blood sugar. Do another blood sugar or six. Stop and treat a high blood sugar. Change your pump site. Change your reservoir. If ever there is a cure fortype 1 diabetes, we are all going to suddenly find ourselves with so much free time that we’re going to take over the world.

(Not so) Little Victories:

  1. I’m still here. When I was diagnosed with type 1 diabetes, the median age for people with type 1 diabetes was late 30s. It’s now in the 60s. Seeing as I’m now in my late 30s, I’m really grateful for that.
  2. Not only am I still here, but I feel pretty damn good. (Knocking wood.)
  3. I’m educating others. I work part time in the local JDRF (Juvenile Diabetes Research Foundation) chapter and create brochures, flyers, postcards, etc. promoting outreach and fundraising events and I run a support group for adults living with type 1 diabetes. I may be living with this disease, but I’m not alone. The least I can do is help.
  4. Waking up in the morning. If you’ve ever had an overnight low (and chances are that if you have type 1, you have) then you understand what I mean. Waking up in the morning after a difficult night can make a person very thankful.
  5. I’m more aware of what’s going on in my body than the average Joe. And chances are that if you use medical jargon around me I’ll understand. I make decisions everyday that are better for my body in the hopes that it will make a difference.

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Miracle Cure. Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer  😉

San Antonio Woman Discovers Cure for Type 1 Diabetes

Contact: A. Kelsey Metcalf
Company: Hoarse Raven
https://hoarseraven.wordpress.com

FOR IMMEDIATE RELEASE:

April 20, 2012

San Antonio, TX – A local woman has discovered the cure for type 1 diabetes after researchers and specialists have failed to do so for decades. Her solution can be found on just about every street corner in the United States and is quite affordable for most Americans.

Dubbed “DWI” (Drink Without Insulin), this cure utilizes alcoholic beverages to relieve sufferers of type 1 diabetes of the day-to-day stress, strain, pain and general inconvenience of this chronic disease. Metcalf, a 30 year veteran of this disease, discovered the cure quite by accident. “My daughter was really acting out one day and when I finally settled her down for bed I allowed myself a glass of wine.” she explains. “Eventually that glass turned into a bottle and then the bottle into two and suddenly I realized that I didn’t care that I had diabetes anymore and didn’t even feel the need to do a blood sugar!”

Metcalf drinks at least 14 alcoholic beverages a day and finds that this is the perfect amount to remove her diabetes from her life completely. “It’s amazing,” she details further, “by about the 10th drink you just don’t have a care in the world!”

Metcalf cautions that the number of beverages will vary per person and by weight and alcohol tolerance of each individual. She recognizes that she will likely need to increase the number of drinks she imbibes as her tolerance increases but counters that it is still less expensive than insulin and with not taking insulin anymore she won’t need to drink much longer either.

Metcalf is quickly releasing a book titled, “Inebriation NOT Insulin” (Simon & Shyster, 2012) recounting her discovery of the cure and how it has also benefitted her in other ways such as with general stress reduction and relief from her Rheumatoid Arthritis.

Diabetes (medically known as diabetes mellitus) is the name given to disorders in which the body has trouble regulating its blood glucose, or blood sugar, levels. There are two major types of diabetes: type 1 diabetes and type 2 diabetes. Type 1 diabetes, also called juvenile diabetes or insulin-dependent diabetes, is a disorder of the body’s immune system — that is, its system for protecting itself from viruses, bacteria or any “foreign” substances. Type 1 diabetes occurs when the body’s immune system attacks and destroys certain cells in the pancreas.

Individuals interested in obtaining this cure for type 1 diabetes are encouraged to visit their local grocery store (in participating states), bar, and/or liquor store for futher information. You may also visit http://www.THECURE.com to get started today.

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Disclaimer: This post is intended as a modest proposal for responsible adults of legal drinking age who have a sense of humor. It is purely intended for entertainment purposes. The author is not really advocating the abuse of alcoholic beverages in lieu of monitoring your diabetes. It is not the author’s intent to promote mis-use of alcohol, alcoholism, hazing, binge drinking or any other form of alcohol abuse. However, if you do mis-use alcohol, please send her interesting anecdotes from these experiences so that she may live vicariously through you.

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