Posts Tagged ‘ra’

Comment! Pick someone else’s blog post and write a comment to them. Write that comment as your post for today and link back to them to let them know you were inspired.

There’s a blogger with a post that I REALLY want to comment on. I found it completely by accident one day when I was surfing Facebook or Twitter (or both) and happened to click on a link that interested me for whatever reason and was astounded by what I read. This person has MG (myasthenia gravis) first and type 1 diabetes second. I specifically mention them in that order because this is how the writer presents them to her reader. She’s had MG longest and explains that type 1 diabetes came along but is mostly viewed as a secondary annoyance rather than a primary concern.




It blew my mind. The idea that someone could consider the disease I’ve struggled with for almost 32 years to be a secondary concern made me stare at the computer screen as though the text had suddenly become written in a language I didn’t speak. But then I stopped and thought about it. And came to the realization that I do the very same thing. I too have two chronic diseases – type 1 diabetes and Rheumatoid Arthritis (RA). I also specifically talk about them in that very order.

Type 1 diabetes was my original diagnosis from when I was seven years old. I was diagnosed with rheumatoid arthritis when I was in my 30s. Maybe it’s the age at diagnosis, maybe it’s the perceived cellular damage from the disease, but diabetes has always been my primary concern. RA has remained more of a, well, nuisance. When I was first diagnosed I was heartbroken. When I researched the chemotherapy medication my doctor wanted to put me on (whose list of side effects includes DEATH) I was fearful. However, when I finally got over my self-pity party I actually thought, wait, I just need to take a pill for this? BRING IT ON. After diabetes it just seemed so simple.

So I read this person’s blog and had an epiphany. There are people with RA reading my blog and thinking the same thing. These are people who’ve suffered much worse with this disease and can’t imagine placing another disease in a higher priority. It made me think about that fable. You know, the one where a group of people go in a room and put all their troubles on a table and have the option to take someone else’s? That’s right, the one where they end up taking back their own troubles and going home.

I would so totally do that with type 1 diabetes – it’s the evil I know.


I would comment on the blog that inspired this post – only I can’t find it! I’ve looked everywhere. I know it’s out there though, so if it’s your blog, please let me know and I’ll comment. In your post, you had mentioned that MG means you have to rest and diabetes means you have to exercise (if that helps)…



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Word Cloud. Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make the branches of your “tree” extend further. http://www.wordle.net/

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5 Challenges. 5 Small Victories. Make a list of the 5 most difficult parts of your health focus. Make another top 5 list for the little, good things (small victories) that keep you going.

Most Difficult:

  1. Constant worry. The other day my left big toe was hurting me. Did I think about the fact that I had run 3 miles and walked 2 and then spent several hours in heels? No. I worried about whether I was developing neuropathy. For the record, my big toe is now fine.
  2. Getting prescriptions filled. ONE OF THE MOST ANNOYING ACTIVITIES. The doctor’s office didn’t respond to the pharmacies request. So this now involves phone calls to the pharmacy, phone calls to the doctor’s office, phone calls to the pharmacy again – what, you STILL haven’t received the prescription?!? Yup, another call to the doctor’s office. This happens so often with ALL my doctor’s (at some point or another).
  3. Getting my pump replaced.My pump breaks. A lot. My friends with type 1 diabetes ask what the heck I’m doing with the pump but honestly I think I just have bad pump karma. So every time I need a new one, it’s about an hour on the phone (at least). Then, when the new pump arrives, it’s programming it. But at least now my daughter’s old enough to help.

    Programming pumps
    Yay, she thinks it’s FUN!!

  4. Going to bed. If you’ve ever had an overnight low (and chances are that if you have type 1, you have) then you understand what I mean. When you’re feeling especially fragile, going to bed can be a bit nerve-wracking.
  5. Daily interruptions. Stop and do a blood sugar. Stop and take your medication. Stop and make necessary doctor/pharmacy/pump manufacturer phone calls. Stop and treat a low blood sugar. Do another blood sugar or six. Stop and treat a high blood sugar. Change your pump site. Change your reservoir. If ever there is a cure fortype 1 diabetes, we are all going to suddenly find ourselves with so much free time that we’re going to take over the world.

(Not so) Little Victories:

  1. I’m still here. When I was diagnosed with type 1 diabetes, the median age for people with type 1 diabetes was late 30s. It’s now in the 60s. Seeing as I’m now in my late 30s, I’m really grateful for that.
  2. Not only am I still here, but I feel pretty damn good. (Knocking wood.)
  3. I’m educating others. I work part time in the local JDRF (Juvenile Diabetes Research Foundation) chapter and create brochures, flyers, postcards, etc. promoting outreach and fundraising events and I run a support group for adults living with type 1 diabetes. I may be living with this disease, but I’m not alone. The least I can do is help.
  4. Waking up in the morning. If you’ve ever had an overnight low (and chances are that if you have type 1, you have) then you understand what I mean. Waking up in the morning after a difficult night can make a person very thankful.
  5. I’m more aware of what’s going on in my body than the average Joe. And chances are that if you use medical jargon around me I’ll understand. I make decisions everyday that are better for my body in the hopes that it will make a difference.

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